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One word sums up why Im not a more prolific writer -- teenagers
-- and if I clarify that slightly with my teenagers, youd probably think Soccer Mom. Not an unwarranted
guess, what with it being the modern-day default for many families,
but when your oldest child is an agoraphobic sixteen year old
who wont leave the house without a parent and then cant tolerate
public noise and commotion for long when he does, soccer doesnt
even enter the picture.
Somehow, though, I write, despite his uncertainties. I build
my writing life around wisps of opportunity, trying to accomplish
enough dribs and drabs in paragraph form that something measurable
emerges. I write when the respite worker visits, when my husband
takes over the evening routine, when an unexpectedly burst of
stamina graces me. Stealing moments, its all stealing moments.
I seize what I can grasp and release that which I cant.
For a time, I had a few hours a day in which to carve out my successes,
but over the last year, my sons condition -- a mental illness
that has worsened, despite dedicated medical, therapeutic, and
educational support -- increasingly claimed more and more of my
time. His school attendance grew increasingly dicey, and his
outbursts of instability in school meant phone calls home and
dismissals. More than once, the outbursts degraded into breakdowns,
necessitating several hospitalizations and almost exhausting our
insurances annual allotment of hospital days. Finally, shortly
before Thanksgiving, he had to leave school all together.
In an instance, I went from harried mother and barely productive
writer to fulltime, fully immersed caregiver.
I don't want to move today. I'm bone weary. He didn't go to
sleep until after midnight and then woke up a 5:30 a.m. He tried
not to disturb us -- he quietly went to the bathroom, then fetched
himself a drink before going to the computer -- but my maternal
radar doesn't let me sleep through that. I dont have the energy
to think about the bedding that he wet overnight, let alone launder
it. How can I create characters and plot when I don't even have
enough energy to think?
That which fuels him exhausts me.
Writing requires solitude and energy. Its recipe includes the
space to think and to daydream, uninterrupted stretches of time
to write, and enough daily routine to allow forward progress.
I had those ingredients at one point in my writing career. But
now I cant even fold a load of laundry without my son having
to check in on me, his separation anxiety is so pervasive.
I can no longer count on those long stretches of morning hours
in which to indulge my creative drive. Even worse, when I do
have the means, I dont always have the motivation. Sometimes,
when opportunity does arrive, Im already drained of all emotional
and physical stamina. Writing is impossible.
The drama of having a psychiatrically disabled child is one of
rapid pendulum swings. He might have a manic episode that complicates
the better part of a week. Or maybe hes fixated on one card
game and needs to play it several times a day to keep from agitation.
Or maybe he begs me to take him on a scenic drive to soothe him.
The at-home therapists tell me that Im his transitional item.
He looks to me for redirection and when I give it, he can then
self-soothe. I am the teddy bear of a sixteen-year-old bipolar-disabled
man-child.
Snippets. I live on snippets of time. Writing in the dentists
office while my son gets his teeth cleaned. Writing while my
daughter does her homework at the library. Writing during those
rare mornings where he sleeps in -- and I've slept well enough
wake with energy.
It's the kiss of death, having people in your house almost every
day of the week. It's not that I resent forking over time to
them. They do, after all, provide something valuable to us and
give my son contact with the outside world. It bumps up against
me because Ive been robbed of all my solitude, the very thing
I need to ready myself for writing. And if I can't center myself,
how can I coax the beast of creativity to work its magic for me?
I miss my morning sprint of writing. Im supposed to get back
my freedom now that my kids are teenagers. But thats not whats
happened. Instead, its like Ive returned to mothering toddlers.
Im hemmed in and, today at least, I dont like it.
Writing is a greedy creature. It sucks you into its demands and
then insists on your complete attention and dedication. Its
egocentric. Just like children. When mine were little, I almost
completely abandoned writing. I tried writing short observational
essays -- what would now be labeled creative nonfiction -- but
no sooner would I draft something and the muse would hammer me
for line edits, than my toddler son would take his toy hammer
to my foot and demand equal time. I gave up when the first wave
of morning sickness welled up inside me, hinting at my daughters
presence.
Writing became impossible with two in diapers. In some respects,
it didnt matter. Reading Goodnight Moon took the place of creating my own fiction and, as the kids moved
out of diapers and cribs and into underwear and beds, we graduated
to E.B. White and Marguerite Henry novels. My kids would even
hear all the Narnia books before they were halfway through elementary
school.
Eventually, though, the urge to write would return to me. Little
did I know my days of writing freely would be so few and far between.
Why dont you write about your son, they always ask me? I still
indulge the question, but man, Im getting tired of it. Profoundly
so. Im still too close to the pain and suffering of my sons
loss of self to write about it. And writing about the grief is
a lot like talking about it. Repeat the story and you relive
every emotion that goes with it. Recollection can traumatize
you.
Maybe someday Ill be able to write about it, but not now. Not
while Im this deeply immersed in it.
Writing is my refuge. It started out as a way to live creatively,
as a facet of my identity, but it has evolved to become so much
more. Now, it gives me space from the demands of my sons care.
It gives me a richness and reward that, other than lovemaking,
is almost impossible to capture. Much like that bumper sticker
about fishing, a bad day when I cant turn a phrase without editing
it several times still beats a good day without writing.
I ache inside when Ive gone too long without putting ideas to
paper, without pounding my storytelling out at the keyboard.
My heart literally itches. When the push to create becomes too
strong to ignore and the compulsion must be appeased, I write
until either my mental stamina cries uncle or I reach that last
sentence of satisfaction. Often, it doesnt matter what I write
-- a diary entry, my weblog, a review or a piece of fiction --
the results are the same. Ive gotten my fix and thats satisfying
enough.
I am, however, all too aware of how mortal ones writing is.
I think of my mother, who stopped writing years ago when doctors
found a melanoma, easily removed along with the eye that encapsulated
it. Youd think that an encounter with a rare and spectacular
cancer would have moved her to write as if there was no tomorrow,
to hastily get down on paper everything that had lived in her
imagination and memory for decades. But the eye was her Samsons
hair. An inertia born of situational depression and fatalism
overtook her. She would never write those stories of her family
living in a boxcar during the darkest days of the depression,
of the Midwestern girl who was so innocent that, after following
her husband to England, she didnt even realize theyd been adopted
by gay and lesbian locals, of the mother who listened to the planes
flying maneuvers while her husband was restricted to base in
a red alert that would have a name: the Cuban Missile Crisis.
All those stories, lost because her perspective is gone. Several
years later, that melanoma returned, this time to her lungs and
her liver. Her final battle was brief and her last sigh a relief,
but all that was her creative soul -- her memories, her tales
-- would vanish with that last breath. Forgive the cliché, but
life is too short.
The at-home behaviorist said a lot yesterday, but four words stood
out: More respite for you. But not respite as in someone coming
into our house so I can go out for a couple of hours at a time,
but respite as in finding day programs for my son. Life skills
programs, possibly with vocational elements. Our caseworker agreed,
said job coaches exist who understand the cycles of mental illness.
Interrupting my sons reclusive habits now will ensure a more
likely success in the future.
Such a change, though, from the brilliant child of years past,
the one so gifted in mathematics that we joked MIT might come
knocking. His future now isnt what we dreamed about then.
Neither is mine. Once my children were in elementary school,
I could afford to let the greedy creature of writing back into
my life. He could come in and devour my time between 9:00 and
300 and I, in turn, could dream big. Novels! Short stories!
Essays! Articles! Acclaim and visibility!
Thats not exactly what happened. I havent written a novel since
the year before my sons brain chemistry did him in. I struggle
to write enough short stories in a year to keep sales and my by-line
out there -- and if some very generous and giving editors hadnt
supported me during the downed months of 2002, my vitae wouldve
sported an unstylish void. Ive had to learn to accomplish with
less: less time, less leeway, less tolerance for writers block.
Ive had to learn to be efficient in my writing, as if every chance
to write for publication might be my last for months to come.
Im almost Machiavellian about it.
Its uncertain what the near future will bring my son. We will,
in the near future, look at residential facilities for him --
basically boarding schools for the mentally ill that have a high
degree of medical oversight built in -- but its not certain hell
go there. An alternative plan centers on keeping him home where
he thrives within our strong, committed, loving family, but get
him into a day program that combines life skills with vocational
job training. Each path has its strengths and weaknesses.
Residential would have tighter oversight, less demands, and 24/7
respite for the family for a long period of time. Id be able
to resume writing fulltime during the duration of his stay. But
hed come home from residential less able to cope with daily living
-- no matter how good a facility might be, its still an institution
-- and hed need a day program to adjust to standard living situations.
My time, when he returns, would once again become limited.
Putting him in a day program would give me daily, routine respite,
reduce the closeness as they say, but wont wholly guarantee
a fulltime return to writing for me. And, while a day program
might well prove the better option for my sons success, most
programs are limited by funding or exist at the whim of the state
budget ax. Precarious positions, both.
But I do know that regardless of how and how long my son leaves
home, writing will fill whatever void is left in the wake of his
absence. Writing will smooth over the potholes of my lessened
care giving. It will be the macadam of my freedom.
Perhaps Ill fulfill my hopes of the recent past. Perhaps Ill
write novels, take a writers retreat to Vermont, tackle a short
story for every anthology that comes down the pike -- without
the stress, interruption, and unpredictability that typified last
year. Writing will rescue and renew me. Its a well that quenches
my soul, never runs dry, and only asks that I drink in it regularly.
Its waters never fail me, no matter how often Ive failed it when
lifes brought me up short.
Through all these upheavals, I havent given up on my dreams.
Ive simply deferred my expectations and cautioned patience of
my hopes. Ive had to take success in small measure and in all
things, not just my writing. But one thing I know: Writing will
be there when I can be there. It will wait for me, just as it
did when my children were little. Many things in life may be
uncertain, but writing? Writing, I can count on.
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